Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemic.

PURPOSE: This study aimed to describe the perception of parents of children/adolescents with chronic conditions of their quality of life and family functioning during the COVID-19 pandemic and explore how the COVID-19 pandemic affected family management of children/adolescents' chronic conditions. DESIGN AND METHODS: A total of 237 parents of children/adolescents with chronic conditions participated in this cross-sectional study. Data were collected through an online questionnaire using the Paediatric Quality of Life Inventory™ Family Impact Module and an open-ended question about the impact of the pandemic on the family management of the paediatric chronic condition. RESULTS: The Total Score of PedsQL™ FIM was slightly higher than the midpoint of the scale (M = 60.27; SD = 19.04), and the impact of the pandemic on the family's management of the chronic condition was perceived by 30% of parents as high or moderate. Statistically significant differences were found between parents who reported a high or moderate impact of the pandemic and those reporting little or no impact of the pandemic regarding parental quality of life and family functioning (t (233) = 8.13, p = .00, Cohen's d = 1.14). Two themes emerged from the analysis of the open-ended question: Impact on the child/adolescent and Impact on the family. CONCLUSIONS: Parents of children/adolescents with chronic conditions reported an average quality of life, and the COVID-19 pandemic significantly impacted the family management of chronic conditions. PRACTICE IMPLICATIONS: These results highlight the importance of developing interventions to support families in complex situations and contexts, targeting family functioning, family quality of life, and emotional management.

Happiness as a strength in the promotion of adolescent and adult young health.

OBJECTIVES: to assess the relation between sociodemographic characteristics of young people associated with the subjectivity of being happy; to evaluate the relationship between the subjectivity of being happy and the perception of health status; to evaluate the relationship between the subjectivity of being happy and the school and family environments and peer groups at school. METHODS: this is an observational study, with an intentional sample of 1,069 young Portuguese people, with ages varying from 14 to 24, most of them women, attending secondary education. The self-filling questionnaire was used. RESULTS: there are statistically significant associations between the subjectivity of being happy and schooling, perception of health status, family APGAR, school and family involvement, absence of problems or teasing by peers at school. CONCLUSIONS: a positive and holistic care coupled with the potential of obtaining and consolidating healthy lifestyles for young people will enable health professionals to perceive them as agents of individual and social change.

Happiness as a strength in the promotion of adolescent and adult young health / Felicidad como fuerza en la promoción de la salud del adolescente y adulto joven / A felicidade como força na promoção da saúde do adolescente e adulto jovem

ABSTRACT Objectives: to assess the relation between sociodemographic characteristics of young people associated with the subjectivity of being happy; to evaluate the relationship between the subjectivity of being happy and the perception of health status; to evaluate the relationship between the subjectivity of being happy and the school and family environments and peer groups at school. Methods: this is an observational study, with an intentional sample of 1,069 young Portuguese people, with ages varying from 14 to 24, most of them women, attending secondary education. The self-filling questionnaire was used. Results: there are statistically significant associations between the subjectivity of being happy and schooling, perception of health status, family APGAR, school and family involvement, absence of problems or teasing by peers at school. Conclusions: a positive and holistic care coupled with the potential of obtaining and consolidating healthy lifestyles for young people will enable health professionals to perceive them as agents of individual and social change.

RESUMEN Objetivos: evaluar la relación entre las características sociodemográficas de los jóvenes asociadas con la subjetividad de ser feliz; evaluar la relación entre la subjetividad de ser feliz y la percepción del estado de salud; evaluar la relación entre la subjetividad de ser feliz y el ambiente escolar, familiar y grupo de pares en la escuela. Métodos: estudio observacional con una muestra de 1.069 jóvenes portugueses, entre los 14 y los 24 años, en su mayoría mujeres, que asiste a la escuela secundaria. Se utilizó el cuestionario de autollenado. Resultados: se destacan asociaciones estadísticamente significativas entre la subjetividad de ser feliz y la escolaridad, la percepción del estado de salud, el APGAR Familiar, la participación escolar y familiar, ausencia de problemas o provocaciones por los pares en la escuela. Conclusiones: un cuidado positivo y holístico aliado al potencial de obtención y consolidación de patrones de vida saludables de los jóvenes permitirá a los profesionales de la salud percibirlos como agentes de cambio individual y social.

RESUMO Objetivos: avaliar a relação entre as características sociodemográficas dos jovens associadas à subjetividade de ser feliz; avaliar a relação entre a subjetividade de ser feliz e a percepção do estado de saúde; avaliar a relação entre a subjetividade de ser feliz e o ambiente escolar, familiar e grupo de pares na escola. Métodos: estudo observacional, com amostra intencional de 1.069 jovens portugueses, entre 14 e 24 anos, maioria do sexo feminino, que frequenta o ensino secundário. Utilizou-se o questionário de autopreenchimento. Resultados: destacam-se associações estatisticamente significativas entre a subjetividade de ser feliz e a escolaridade, a percepção do estado de saúde, APGAR Familiar, o envolvimento escolar e familiar, ausência de problemas ou provocações pelos pares na escola. Conclusões: um cuidado positivo e holístico aliado ao potencial de obtenção e consolidação de padrões de vida saudáveis dos jovens permitirá aos profissionais de saúde percebê-los como agentes de mudança individual e social.